By Judith Graham, Kaiser Health News
In the middle of the night, Stefania Silvestri lies in bed remembering her elderly patients' cries.
“Help me."
“Please don't leave me."
“I need my family."
Months of caring for older adults in a Rhode Island nursing home ravaged by COVID-19 have taken a steep toll on Silvestri, 37, a registered nurse.
She can't sleep, as she replays memories of residents who became ill and died. She's gained 45 pounds. “I have anxiety. Some days I don't want to get out of bed," she said.
Now, as the coronavirus surges around the country, Silvestri and hundreds of thousands of workers in nursing homes and assisted living centers are watching cases rise in long-term care facilities with a sense of dread.
Many of these workers struggle with grief over the suffering they've witnessed, both at work and in their communities. Some, like Silvestri, have been infected with the coronavirus and recovered physically — but not emotionally.
Since the start of the pandemic, more than 616,000 residents and employees at long-term care facilities have been struck by COVID-19, according to the latest data from KFF. Just over 91,000 have died as the coronavirus has invaded nearly 23,000 facilities. (KHN is an editorially independent program of KFF.)
At least 1,000 of those deaths represent certified nursing assistants, nurses and other people who work in institutions that care for older adults, according to a recent analysis of government data by Harold Pollack, a professor at the School of Social Service Administration at the University of Chicago. This is almost certainly an undercount, he said, because of incomplete data reporting.
How are long-term care workers affected by the losses they're experiencing, including the deaths of colleagues and residents they've cared for, often for many years?
Edwina Gobewoe, a certified nursing assistant who has worked at Charlesgate Nursing Center in Providence, Rhode Island, for nearly 20 years, acknowledged “it's been overwhelming for me, personally."
At least 15 residents died of COVID-19 at Charlesgate from April to June, many of them suddenly. “One day, we hear our resident has breathing problems, needs oxygen, and then a few days later they pass," she said. “Families couldn't come in. We were the only people with them, holding their hands. It made me very, very sad."
Every morning, Gobewoe would pray with a close friend at work. “We asked the Lord to give us strength so we could take care of these people who needed us so much." When that colleague was struck by COVID-19 in the spring, Gobewoe prayed for her recovery and was glad when she returned to work several weeks later.
But sorrow followed in early September: Gobewoe's friend collapsed and died at home while complaining of unusual chest pain. Gobewoe was told that her death was caused by blood clots, which can be a dangerous complication of COVID-19.
She would “do anything for any resident," Gobewoe remembered, sobbing. “It's too much, something you can't even talk about," describing her grief.
I first spoke to Kim Sangrey, 52, of Lancaster, Pennsylvania, in July. She was distraught over the deaths of 36 residents in March and April at the nursing home where she's worked for several decades — most of them due to COVID-19 and related complications. Sangrey, a recreational therapist, asked me not to name the home, where she continues to be employed.
“You know residents like family — their likes and dislikes, the food they prefer, their families, their grandchildren," she explained. “They depend on us for everything."
When COVID-19 hit, “it was horrible," she said. “You'd go into residents' rooms and they couldn't breathe. Their families wanted to see them, and we'd set up Zoom wearing full gear, head to toe. Tears are flowing under your mask as you watch this person that you loved dying — and the family mourning their death through a tablet."
“It was completely devastating. It runs through your memory — you think about it all the time."
Mostly, Sangrey said, she felt empty and exhausted. “You feel like this is never going to end — you feel defeated. But you have to continue moving forward," she told me.
Three months later, when we spoke again, COVID-19 cases were rising in Pennsylvania but Sangrey sounded resolute. She'd had six sessions with a grief counselor and said it had become clear that “my purpose at this point is to take every ounce of strength I have and move through this second wave of COVID."
“As human beings, it is our duty to be there for each other," she continued. “You say to yourself, OK, I got through this last time, I can get through it again."
That doesn't mean that fear is absent. “All of us know COVID-19 is coming. Every day we say, 'Is today the day it will come back? Is today the day I'll find out I have it?' It never leaves you."
To this day, Silvestri feels horrified when she thinks about the end of March and early April at Greenville Center in Rhode Island, where up to 79 residents became ill with COVID-19 and at least 20 have died.
The coronavirus moved through the facility like wildfire. “You're putting one patient on oxygen and the patient in the next room is on the floor but you can't go to them yet," Silvestri remembered. “And the patient down the hall has a fever of 103 and they're screaming, 'Help me, help me.' But you can't go to him either."
“I left work every day crying. It was heartbreaking — and I felt I couldn't do enough to save them."
Then, there were the body bags. “You put this person who feels like family in a plastic body bag and wheel them out on a frame with wheels through the facility, by other residents' rooms," said Silvestri, who can't smell certain kinds of plastic without reliving these memories. “Thinking back on it makes me feel physically ill."
Silvestri, who has three children, developed a relatively mild case of COVID-19 in late April and returned to work several weeks later. Her husband, Michael, also became ill and lost his job as a truck driver. After several months of being unemployed, he's now working at a construction site.
Since July 1, the family has gone without health insurance, “so I'm not able to get counseling to deal with the emotional side of what's happened," Silvestri said.
Although her nursing home set up a hotline number that employees could call, that doesn't appeal to her. “Being on the phone with someone you don't know, that doesn't do it for me," she said. “We definitely need more emotional support for health care workers."
What does help is family. “I've leaned on my husband a lot and he's been there for me," Silvestri said. “And the children are OK. I'm grateful for what I have — but I'm really worried about what lies ahead."
The Navigating Aging column last week focused on how nursing homes respond to grief sweeping through their facilities.
Join Judith Graham for a Facebook Live event on grief and bereavement during the coronavirus pandemic on Monday, Nov. 16, at 1 p.m. ET. You can watch the conversation here and submit questions in advance here.
Kaiser Health News (KHN) is a national health policy news service. It is an editorially independent program of the Henry J. Kaiser Family Foundation which is not affiliated with Kaiser Permanente.
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