Demeshia Montgomery

Deme Montgomery is a speaker for systemic sclerosis, COPD and the chronic disease community. She is a creator of BIPOC programs, For Love of Children board member and the driving force behind State Bill 133. Demi resides in Dayton, Ohio, where she is a wife, mother and community volunteer. Demi is also the creator of Jacob’s Hugs Registry and The Waiting Room Entertainment. She is a speaker/collaborator/moderator/board member for Patients Rising, Pulmonary Fibrosis Foundation ambassador, Rare Disease Diversity Coalition (RDDC) committee member and a COPD Foundation captain. She is also the subject of a feature film on the Disorder Channel called “Amy & Demi’s Scleroderma Journey.” Deme’s responsibilities are to increase COPD disease awareness within her community and surrounding areas by obtaining proclamations annually, coordinating events and volunteering for fundraising events. She attends the annual Capitol Hill day and meets with public officials regularly to advocate for COPD research funding. She also creates interactive content for the chronic illness community at large. Deme is an alumnus of University of Phoenix with an AA in human service management and is trained in mental health first aid. She is also the recipient of the National Scleroderma Foundation 2020 Advocate of the Year Award and 2022 Program of the Year award for BIPOC (Black, Indigenous, People of Color).