porphyria

My 19-Year Journey to Diagnosis of This Painful, Rare Disease

My 19-Year Journey to Diagnosis of This Painful, Rare Disease

I lived with excruciating pain for nearly two decades before I was diagnosed with acute intermittent porphyria (AIP).

An Enigma of Medicine: Acute Hepatic Porphyria (AHP)

An Enigma of Medicine: Acute Hepatic Porphyria (AHP)

Acute hepatic porphyria, or AHP, refers to a family of rare, genetic diseases, characterized by debilitating and painful attacks that can be life threatening or require hospitalizations.